I Am Here Today

This will be my first open letter to you, my love bug. A dear friend suggested I leave you my thoughts while they are fresh and have the conversations I imagine we would have if you could tell me what you are thinking. And with that in mind, I couldn’t just post this video today,Continue reading “I Am Here Today”

Learning how to measure  time 

We live in a world of dates, deadlines and milestones. I catch myself measuring each special moment and holiday in reference to “last year” or the “last time.” The good news is we are beyond grateful for having the chance to say these words. We loved those moments like they might really be our last.Continue reading “Learning how to measure  time “

Progress every day 

It feels like as good a time as any to put it out there. Things are pretty good these days. I still hold my breath every time she bends over or stares into space, but our little warrior defies the inevitable. And it is most likely going to happen again, so we will try notContinue reading “Progress every day “

This Special Road: Giving to Others

I am repeatedly blown away by people’s support for our journey. Both dear friends and complete strangers praise our strength and give selflessly of their love. I admit it helps even if only for a second to know someone is recognizing it’s not an easy road. But here’s the other side. I am reminded daily thatContinue reading “This Special Road: Giving to Others”

One Month and Counting…

It’s been a long haul… We try and take it a day at a time, but every once in a while we hold our breath and put these milestones out there defying superstitions to shut us down. We will keep counting silently for as long as it takes. #epilepsywarrior #onemonth #seizurefree #okwithchange #wearpurple via InstagramContinue reading “One Month and Counting…”

A Mighty Moment for Accepting Change

I didn’t necessarily need a cry today, but I sure needed the smile that came with this great blog post. I see the world differently now with all our change, and I love this beautiful moment in time captured by a mom, a juggler, maybe an over-thinker, like me. TheMighty.com has just opened my eyes toContinue reading “A Mighty Moment for Accepting Change”

6 Reminders for Families Learning to Live with Epilepsy

As part of our commitment to sharing about epilepsy every November, we are making a video this year. There was too much info to fit and this is something I thought might be a good blog list. Our list of reminders for families first getting accustomed to fighting this battle. 1.  Face the monsters. Don’t be afraidContinue reading “6 Reminders for Families Learning to Live with Epilepsy”

For My Lovebug – it’s November

Excerpt from A Warrior’s Tale, a poem From my blog. For #mylovebug For #eftxphotochallenge #day13 #love #epilepsyawareness #mypoem Excerpt from A Warrior’s Tale, a poem From my blog. For #mylovebug For #eftxphotochallenge #day13 #love #epilepsyawareness #mypoem #okwithchange via Instagram http://ift.tt/1pVACfk

Reflections on the playground

http://ift.tt/1sDX4IB via IFTTT Preschool playground. All I can think about is germs. I had to come add more musings to this one. It’s been a rough few weeks, and not because of any health issues. At least not directly. It’s more the emotional toll all the constant change has taken on us as a family.Continue reading “Reflections on the playground”