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Category Archives: Blog

Badge of Honor

That’s right sweet girl. You wear that pink badge of honor my super hero girl. Didn’t even flinch when they took her blood. (Taken with Instagram)

Posted bycmamantovSeptember 26, 2012November 24, 2015Posted inExtras, Parent AdvocacyTags:Lab work, Reese

Can’t believe this is the routine (Taken with Instagram)

Posted bycmamantovSeptember 26, 2012July 25, 2014Posted inExtras

Despite the 2 pacifiers near her, the toe seemed the best fit for falling asleep. It was in her mouth just prior to me being able to snap the shot. I swear. (Taken with Instagram)

Posted bycmamantovSeptember 25, 2012July 25, 2014Posted inExtrasTags:funny, Reese, share

Getting off the roller coaster: Reese update What a ride we have been on. Reese is great after 3 days seizure free and even sleeping through the night! It seems a combo of the meds and the ear infection clearing up has put us back on track. We even got some giggles out of herContinue reading

Posted bycmamantovSeptember 25, 2012July 25, 2014Posted inExtrasTags:Reese, share, story

Waiting to breath – Reese Update

We hold our breath every time she closes her eyes or tries to push out a poop, because it looks like it might be happening. I cannot believe how accustomed I have become to watching my baby girl go rigid and ashen gray for 2 minutes. And I shake my head at the number ofContinue reading “Waiting to breath – Reese Update”

Posted bycmamantovSeptember 22, 2012Posted inExtrasTags:Reese, story

On her knees again means she is feeling better (Taken with Instagram)

Posted bycmamantovSeptember 22, 2012July 25, 2014Posted inExtras

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