This girl… 

http://ift.tt/1xhpnME She has no idea how spoiled she is. And you can’t blame her. 4 brain surgeries pretty much earn you anything you want in my book. You can’t see Daddy’s arm perfectly propping up this pillow to have the optimum drinking angle. Hopefully some day we will all get good chuckles from all theContinue reading “This girl… “

No Use Crying Over Spilt Milk

Yes, we had some milk spillage tonight, and no, that is not a yoga pose or a new form of child punishment. I mean come on folks, ain’t no thang in this house — especially on a night like this. I was so calm when I heard the telling “oops” from behind me. But honestly,Continue reading “No Use Crying Over Spilt Milk”

Under Control: A Reese Update

Control is not something I feel I have much of these days. It takes so much for us to just maintain a normal routine, and that’s mostly out of our hands, too. It depends on who is sleeping well and who is hungry and if I don’t get away when Reese is sleeping, then howContinue reading “Under Control: A Reese Update”

Pointer Fingers and Personal Connections

It’s been since the last surgery that we noticed Reese pulling out that left pointer finger. It’s one of the many things we take for granted as parents. Your child just figured it out, naturally. One day they can separate their finger from their hand and voila! They can manipulate things. Reese has been sneaky,Continue reading “Pointer Fingers and Personal Connections”

Get Out Your Pencils!

It’s been a good week. Super hectic. Crazy, really. But, still great progress for Reese, so it’s a winner in my book.  To be brief, Reese has shown some real mental strength and focus this week. It’s an amazing feeling to witness her little breakthroughs — lots of pointer finger work with the left hand,Continue reading “Get Out Your Pencils!”

Our Definition of O.K.

Reese has had a great day — therapy and music class went well. (Video posted separately.) She made eye contact, and I think, even tried to imitate a friend when we were dancing. That stimulation comes home with her and she is a happy girl. She is someone who wants to make eye contact withContinue reading “Our Definition of O.K.”

It’s Time for the Dreaded Update

The overdue update is here. I realized everyone is wanting to know details of what happened and what’s going on, and the real question of — what does this mean now? So you can imagine that is why I think I’ve been avoiding this post. Without being boring, here’s a brief overview. After four days onContinue reading “It’s Time for the Dreaded Update”