As I continue to hone my goals for building out a little corner of the Internet here, I debate about how much people want to hear me think out loud. Regardless of how that shakes out, I do believe my purpose is to help parents, and professionals in this space, develop their communication skills. IContinue reading “Fueling visible change with communications”
Category Archives: Parent Advocacy
Listening, a step to finding my true parent advocacy voice
Effective relationships look different in the corporate world compared to personal relationships. However, neither of those fit this space where we live as special needs parents. Which leaves this really unique, gaping hole for those of us who have to be very personal, but on a professional playing field — with teachers and therapists and doctors and child life specialists.
Parents as partners, Thankful to be part of the solution
Originally posted on Mickie’s Miracles. I am full of reflection this time of year. On the heels of Epilepsy Awareness Month, while we approach a new year, I am grateful for three years of seizure freedom for my baby girl. I am grateful to a team of doctors, nurses, epileptologists, and neurosurgeons, and a dedicated EpilepsyContinue reading “Parents as partners, Thankful to be part of the solution”
Finding her voice through AAC
Finding my daughter’s voice by focusing on her AAC device is just the beginning.
Learning how to measure time
We live in a world of dates, deadlines and milestones. I catch myself measuring each special moment and holiday in reference to “last year” or the “last time.” The good news is we are beyond grateful for having the chance to say these words. We loved those moments like they might really be our last.Continue reading “Learning how to measure time “
Progress every day
It feels like as good a time as any to put it out there. Things are pretty good these days. I still hold my breath every time she bends over or stares into space, but our little warrior defies the inevitable. And it is most likely going to happen again, so we will try notContinue reading “Progress every day “