Writing it makes it real… Don’t know whether it’s healthy therapy or teetering on depression though. R is on her fifth seizure in 54 hours. The old pattern is back. One at night, one in the morning. Give her all day to recover, seems better, and then BAM! One right before bed. And so on.Continue reading “Crummy week. What good is being right. Therapy.”
Category Archives: Parent Advocacy
This is what post-seizure looks like. First one in public. Good thing we are wearing our purple #epilepsyawareness
Badge of Honor
That’s right sweet girl. You wear that pink badge of honor my super hero girl. Didn’t even flinch when they took her blood. (Taken with Instagram)