baby steps – OK With Change

Normalizing sensory needs, A call to action

Warning: the first video could be a trigger for people with visual sensitivities. What is your favorite view? Think about why it really sticks with you. Is it the sounds or smells? Maybe it’s the colors? Are you calm or excited? This is one of my daughter’s favorite views. It both stimulates and calms her,Continue reading “Normalizing sensory needs, A call to action”

Progress every day

It feels like as good a time as any to put it out there. Things are pretty good these days. I still hold my breath every time she bends over or stares into space, but our little warrior defies the inevitable. And it is most likely going to happen again, so we will try notContinue reading “Progress every day “

Music – even more to love

My friends know I love music. It fits me in every way — I am auditory, it lets me connect to memories and stories and the creative freedom attracts my inner artist. But none of that tops how it feels to share my love of music with my rugrat. My love bug, who of lateContinue reading “Music – even more to love”

One Month and Counting…

It’s been a long haul… We try and take it a day at a time, but every once in a while we hold our breath and put these milestones out there defying superstitions to shut us down. We will keep counting silently for as long as it takes. #epilepsywarrior #onemonth #seizurefree #okwithchange #wearpurple via InstagramContinue reading “One Month and Counting…”

A Mighty Moment for Accepting Change

I didn’t necessarily need a cry today, but I sure needed the smile that came with this great blog post. I see the world differently now with all our change, and I love this beautiful moment in time captured by a mom, a juggler, maybe an over-thinker, like me. TheMighty.com has just opened my eyes toContinue reading “A Mighty Moment for Accepting Change”

Snippets of Fall 2014

I’ve gotten too far behind on posting. It’s been dizzying how much keeps changing and how I can’t keep up with time moving forward. So consider this a drop in the bucket. A collection of moments that I have string together with a few photos. We are in awe of our little warrior. Every dayContinue reading “Snippets of Fall 2014”