It’s been a long haul… We try and take it a day at a time, but every once in a while we hold our breath and put these milestones out there defying superstitions to shut us down. We will keep counting silently for as long as it takes. #epilepsywarrior #onemonth #seizurefree #okwithchange #wearpurple via InstagramContinue reading “One Month and Counting…”
Tag Archives: epilepsy warrior
The Princess and her Pillow
This girl… She has no idea how spoiled she is. And you can’t blame her. 4 brain surgeries pretty much earn you anything you want in my book. You can’t see Daddy’s arm perfectly propping up this pillow to have the optimum drinking angle. Hopefully some day we will all get good chuckles from allContinue reading “The Princess and her Pillow”
No Use Crying Over Spilt Milk
Yes, we had some milk spillage tonight, and no, that is not a yoga pose or a new form of child punishment. I mean come on folks, ain’t no thang in this house — especially on a night like this. I was so calm when I heard the telling “oops” from behind me. But honestly,Continue reading “No Use Crying Over Spilt Milk”
My Army of Oils
It's been very comforting to see a difference in her. Glad I have had a few months to get comfortable with oils to know how best to use them in an emergency.
Under Control: A Reese Update
Control is not something I feel I have much of these days. It takes so much for us to just maintain a normal routine, and that’s mostly out of our hands, too. It depends on who is sleeping well and who is hungry and if I don’t get away when Reese is sleeping, then howContinue reading “Under Control: A Reese Update”
Our Little Exploradora
Snapped these when I found her in the corner of forgotten toys. Weeks ago I stacked up some odds and ends behind the couch and she managed to wedge herself in here between the pirate ship and the monster truck. I figure this tough little girl is bound for a tomboy future, and entitled toContinue reading “Our Little Exploradora”
Get Out Your Pencils!
It’s been a good week. Super hectic. Crazy, really. But, still great progress for Reese, so it’s a winner in my book. To be brief, Reese has shown some real mental strength and focus this week. It’s an amazing feeling to witness her little breakthroughs — lots of pointer finger work with the left hand,Continue reading “Get Out Your Pencils!”
I believe in all the research that music helps with healing and learning and I have always believed in my heart she loves music as much as I do. Sometimes I twirl around the room holding her or boogie down and she giggles. But I had no idea she actually connected dancing with music beforeContinue reading
Our New Life: Facing the World
I feel like there’s a caption here, representing the story of her life…”time to face the world, again” or something. #epilepsywarrior
