brain surgery – OK With Change

The Princess and her Pillow

This girl… She has no idea how spoiled she is. And you can’t blame her. 4 brain surgeries pretty much earn you anything you want in my book. You can’t see Daddy’s arm perfectly propping up this pillow to have the optimum drinking angle. Hopefully some day we will all get good chuckles fromContinue reading “The Princess and her Pillow”

Fourth of July is Supposed to be Fun

So excited to be on this trip. To get to be out of our house. To let Davis run wild and allow Reese to explore new things. To be spoiled by my parents who are thrilled at sharing all they love with us. To do it up on the Fourth like we did when weContinue reading “Fourth of July is Supposed to be Fun”

I believe in all the research that music helps with healing and learning and I have always believed in my heart she loves music as much as I do. Sometimes I twirl around the room holding her or boogie down and she giggles. But I had no idea she actually connected dancing with music beforeContinue reading

Getting Spoiled

Someone is really spoiled. Since we got home from brain surgery, she’s been sleeping in our bed parts of every night for obvious reasons. Now she seems to have decided she should start out here and save us all the time of getting up. And the guilt kicks in. I’ve held her down and letContinue reading “Getting Spoiled”

Let the Healing Begin: Graphic Warning

Let the healing begin, sort of. Dissolving stitches almost gone. Staples come out Tuesday. I know it’s probably been hard to piece together where things are with us so here is the abridged version. First surgery was for the EEG implant and we got the data we needed. Second and third surgeries were emergencies toContinue reading “Let the Healing Begin: Graphic Warning”

Holding on

There is no amount of space big enough to hold our fears right now. They just took Reese back for emergency surgery to remove the blood pooling outside her brain again. They feel she may have a bigger issue that needs to be looked at so tomorrow’s epilepsy surgery is postponed. This is not aContinue reading “Holding on”