I am so happy all this attention for ALS has come from an accidental, viral social media game. It means (for the most part) people are open to learning new things and that we can find the good in people. It’s also an impressive example that good can come out of my beloved digital world.Continue reading “Bring on the Research! Happy for ALS”
Tag Archives: epilepsy
Another night at the Castle
So the update that goes with these happy photos is this: we thought we might go home today because she has been doing so well we don’t even have an IV anymore. (She managed to kill or pull out all 3 in 4 days). But we will stay another night to be safe. It wasContinue reading “Another night at the Castle”
Mommy rant: Hospital Livin’
My view. Let’s just say ICU rooms aren’t designed for the parents. Somewhere over there beyond the cords and electrical stalactites is my daughter. And I get it.. It’s about her not me. It’s about the nurses and doctors who need to give her what she needs. But it’s still annoying that I can’t seeContinue reading “Mommy rant: Hospital Livin’”
Something new to worry about
Our planned surgery is next Tuesday. Thought it would never get here. As I can’t say it enough, again, thank you to everyone who has helped us big and small. It’s been a wonderful month overall. We’ve been able to spend so much quality time together as a family and even when Reese has hadContinue reading “Something new to worry about”
Getting Spoiled
Someone is really spoiled. Since we got home from brain surgery, she’s been sleeping in our bed parts of every night for obvious reasons. Now she seems to have decided she should start out here and save us all the time of getting up. And the guilt kicks in. I’ve held her down and letContinue reading “Getting Spoiled”
Spent almost 2 hrs fussing in my arms. Maybe Motrin kicked in because all of a sudden I got playful giggles. #toddlerblues #craniotomy #epilepsy (Source: http://instagram.com/)
OK With Change 