Tag Archives: brainsurgery

I was trying to see how red her hair is in the sunset, but ended up getting a straight on shot of the scar. I hate how it looks like the side of a baseball with the stitches in the perfect curve. #epilepsywarrior #brainsurgery

Reality is it’s not all roses after #brainsurgery. Baths aren’t as fun as they used to be. She screamed bloody murder when I tried to massage around the stitches. And trust me, I’m no nurse! The squishy head thing gives me the willies. But we survived. And I love the #BestPoutyLips. #MommySucks #HowCouldYou?!

A little downtime before #goinghome. #stillwaiting #brainsurgery #teacollection #epilepsywarrior @cookchildrens

Another night at the Castle

So the update that goes with these happy photos is this: we thought we might go home today because she has been doing so well we don’t even have an IV anymore. (She managed to kill or pull out all 3 in 4 days). But we will stay another night to be safe. It was on the 4/5 day that she had her first bleed after the surgery last time.

So now we just hang out and we are free to roam the halls. There is a good chance we go home tomorrow provided that Hematology is satisfied she is stable. Everybody else has cleared her. So we have one more night here at the castle.

Our Warrior Gets A Medal

Showing off her medal. Big D wanted her to have it because she deserves it more than he does. #hisidea #sweetboy #epilepsywarrior #brainsurgery

Had to come add to this.

This boy of mine knows what melts my heart. He received this medal for reaching a reading milestone at school. (Many children got it). But he still was very excited!

So a couple days later when we were at home and Reese did something, he said she really was doing great things and he wanted her to get a medal. Before we even left for hospital he was hanging his medal on her door to be hers. Can’t believe that a week later he is still thinking about it and wanted to bring it to her in the hospital.

These are the moments that tell me in his own way he is worrying about her, thinking about her and above all missing her, and us.

It is so hard being the sibling. We are so proud of how he is coping with it all. And to be sure they know how special their love is I have documented it here as proof for those moments down the road when they aren’t getting along. 🙂 Even then, we will be grateful that they can have those moments because it will mean Reese will have come so far.

Cake on a stick?!!! Where have you been all my life?! #TotallySpoiled #brainsurgery #BecauseSheCanHaveAnythingSheWants