Originally posted on Mickie’s Miracles. I am full of reflection this time of year. On the heels of Epilepsy Awareness Month, while we approach a new year, I am grateful for three years of seizure freedom for my baby girl. I am grateful to a team of doctors, nurses, epileptologists, and neurosurgeons, and a dedicated EpilepsyContinue reading “Parents as partners, Thankful to be part of the solution”
Tag Archives: epilepsywarrior
Learning how to measure time
We live in a world of dates, deadlines and milestones. I catch myself measuring each special moment and holiday in reference to “last year” or the “last time.” The good news is we are beyond grateful for having the chance to say these words. We loved those moments like they might really be our last.Continue reading “Learning how to measure time “
6 Reminders for Families Learning to Live with Epilepsy
As part of our commitment to sharing about epilepsy every November, we are making a video this year. There was too much info to fit and this is something I thought might be a good blog list. Our list of reminders for families first getting accustomed to fighting this battle. 1. Face the monsters. Don’t be afraidContinue reading “6 Reminders for Families Learning to Live with Epilepsy”
I was trying to see how red her hair is in the sunset, but ended up getting a straight on shot of the scar. I hate how it looks like the side of a baseball with the stitches in the perfect curve. #epilepsywarrior #brainsurgery
Our Definition of O.K.
Our Doddlebug has had a great day — therapy and music class went well. (Video posted separately.) She made eye contact, and I think, even tried to imitate a friend when we were dancing. That stimulation comes home with her and she is a happy girl. She is someone who wants to make eye contactContinue reading “Our Definition of O.K.”
Coming around
There she is!!!! #epilepsywarrior #feelingherself