Ah the curl. The last of it’s kind. This precious head had been shaved on the left and cut to get out rats nests on the right. The drop in steroids has led to hair falling out and all that beautiful thickness is gone. And so this is all that remains of her former “bigContinue reading “The lone curl “
Tag Archives: epilepsywarrior
It’s Time for the Dreaded Update
The overdue update is here. I realized everyone is wanting to know details of what happened and what’s going on, and the real question of — what does this mean now? So you can imagine that is why I think I’ve been avoiding this post. Without being boring, here’s a brief overview. After four days onContinue reading “It’s Time for the Dreaded Update”
Hair Is Supposed to Stay on Your Head
And then came the crying. Worst part about an overnight #EEG is washing/combing the cement out. Takes days. #epilepsywarrior #day 4
Better With Each Bite
SALMON. It’s what’s for dinner. Because it’s brain food! And it’s delish! Girl can eat at least 6oz. #yum #fish #feelingbetterwitheachbite #epilepsywarrior #achangefromchicken
Having a good day. Been able to focus on playing for a bit. Eating better. Going back down for her second nap. #epilepsywarrior #reese
Out of Here
We met today’s goal! We are outta here. #epilepsywarrior #ourstory #hospitalpros #adios #shortandsweet (at Dell Children’s Medical Center of Central Texas)
OK With Change 