Listening, a step to finding my true parent advocacy voice

Effective relationships look different in the corporate world compared to personal relationships. However, neither of those fit this space where we live as special needs parents. Which leaves this really unique, gaping hole for those of us who have to be very personal, but on a professional playing field — with teachers and therapists and doctors and child life specialists.

A little slice of crazy

Beautiful night to sit outside after dinner. Even if it’s not a peaceful or relaxing moment.  Just a little peek into our special kind of craz here. Manis/pedis are NOT fun this little hyper-sensitive busy bee.  Bubba doing what he does best, distracting Reese during one of her not so fun sensory overload moments. NoticeContinue reading “A little slice of crazy”

This Special Road: Giving to Others

I am repeatedly blown away by people’s support for our journey. Both dear friends and complete strangers praise our strength and give selflessly of their love. I admit it helps even if only for a second to know someone is recognizing it’s not an easy road. But here’s the other side. I am reminded daily thatContinue reading “This Special Road: Giving to Others”

A Successful Day in our Special Needs World

Wow. Feels so good and yet it’s so simple. When we started speech therapy a month ago we discussed her left brain limitations and the therapist suggested we start with right brain communication. Makes sense to me! So that means musical/sounds verses words and reading. She also is somewhat limited by her fine motor skillsContinue reading “A Successful Day in our Special Needs World”