Category Archives: Parent Advocacy

Reflections on the playground

http://ift.tt/1sDX4IB via IFTTT Preschool playground. All I can think about is germs. I had to come add more musings to this one. It’s been a rough few weeks, and not because of any health issues. At least not directly. It’s more the emotional toll all the constant change has taken on us as a family.Continue reading “Reflections on the playground”

Bring on the Research! Happy for ALS

I am so happy all this attention for ALS has come from an accidental, viral social media game. It means (for the most part) people are open to learning new things and that we can find the good in people. It’s also an impressive example that good can come out of my beloved digital world.Continue reading “Bring on the Research! Happy for ALS”

A Successful Day in our Special Needs World

Wow. Feels so good and yet it’s so simple. When we started speech therapy a month ago we discussed her left brain limitations and the therapist suggested we start with right brain communication. Makes sense to me! So that means musical/sounds verses words and reading. She also is somewhat limited by her fine motor skillsContinue reading “A Successful Day in our Special Needs World”

Under Control: An Epilepsy Update

Control is not something I feel I have much of these days. It takes so much for us to just maintain a normal routine, and that’s mostly out of our hands, too. It depends on who is sleeping well and who is hungry and if I don’t get away when Our Princess is sleeping, thenContinue reading “Under Control: An Epilepsy Update”