Happy girl. At least for a couple seconds. Then she started whining to get down. We get 10-12 min in the high chair these days before she is just done. It was still a nice dinner, she was in a chatty mood. Gave Daddy a few special looks, too. Of course I wasn’t fast enoughContinue reading “Video of our Happy Girl”
Category Archives: Parent Advocacy
Our Definition of O.K.
Our Doddlebug has had a great day — therapy and music class went well. (Video posted separately.) She made eye contact, and I think, even tried to imitate a friend when we were dancing. That stimulation comes home with her and she is a happy girl. She is someone who wants to make eye contactContinue reading “Our Definition of O.K.”
Coming around
There she is!!!! #epilepsywarrior #feelingherself
It’s Time for the Dreaded Update
The overdue update is here. I realized everyone is wanting to know details of what happened and what’s going on, and the real question of — what does this mean now? So you can imagine that is why I think I’ve been avoiding this post. Without being boring, here’s a brief overview. After four days onContinue reading “It’s Time for the Dreaded Update”
Hair Is Supposed to Stay on Your Head
And then came the crying. Worst part about an overnight #EEG is washing/combing the cement out. Takes days. #epilepsywarrior #day 4
Having a good day. Been able to focus on playing for a bit. Eating better. Going back down for her second nap. #epilepsywarrior #reese
OK With Change 