I have been stewing on this feeling for more than a week now. There is a huge guilt overshadowing this entire two weeks of spirited festivities. I haven’t been in the spirit really at all. Yes, we’re exhausted, and yes, we don’t see an end in sight so I think that Ground Hog Day feeling has set in. And yet, we are so very grateful for one thing, the only thing I asked for in all of 2013 and 2014 and now we have it.
The truth is it’s not enough. At the time it felt like it would be a miracle to go one day feeling normal. We just wanted to get through special occasions without our world being overturned in an instant. We didn’t want hospital stays to be our measure of life going by. And we have it. We officially have gone 365 days seizure free, (and a couple extra for good measure because we are somehow ridiculously superstitious about a disease we couldn’t control, predict or understand).