I can’t even recap the whole day but I can tell you about the last 3 hours with a delirious smile, because all we can do at this point is laugh.
Bryan’s brother was super kind and satisfied our need to eat something healthy with a big salad and some fruit. But, we got interrupted at least 3 times. First, we were trying to time Reese’s feeding with the nurse’s schedule to give meds, and that meant we had to also get her IV cleaned up so that requires at least an hour of pre-planning because you have to find a tech or an ER person who can handle her tiny veins. But even when that was cleared up there was still no high chair to be found anywhere. Not sure how that is possible in a children’s hospital. So we fed poor Reese in an execsaucer that she was really too tall for. Here she is surrounded by pretty colored toys for the first time in 3 days and we expect her to ignore them to eat! And as if that wasn’t enough, half way through her scarfing down 4 oz of baby food, we smelled either sulfur from a lit match or could have been like plastic melting, I was ready to detach her from all the devices and carry her and saucer out the door. But they decided it was in the ventilation system. Disaster avoided.
Reese didn’t nap at all today. The new anti-convulsant is kicking in. So when they were dilly dallying about all these things to get done I warned them once she is asleep I am not letting you near here. So of course, in all the earlier commotion nurse forgot to take Reese’s blood pressure. She came in and basically I think I could see her change her mind. Said she HAD to do it in about 3 hrs. I nodded politely.
And last, but not least, the video tech couldnt see R in the crib. Hello!??! We have been in this room for 8 hours and he waits until she is finally asleep to have us move her damn crib around so it is in a better position for the ceiling video camera. Of course the 1950s-style asylum crib wheels squeak and we bump just about everything else in the tiny room trying to adjust the crib about 30 degrees. Seriously.
Comedy of errors I tell ya.
OK With Change 