Blog – Page 39 – OK With Change

Been a long day of sleeping. She’s finally staying awake to eat. And we even get to be on the floor with no cords for a little play time. #epilepsywarrior

Our little grumpamoose #getmeoutofhere #imdone #epilepsywarrior (Source: http://instagram.com/)

I cropped it just right — you wouldn’t even know she has two dozen staples in her head. She’s had EKG stickies removed and added too many times, her lips are chapped like she’s been hitting the slopes, her body is covered with IV bruises you could play connect the dots… But the MRI showsContinue reading

You know you’re special when it takes a sonogram to get an IV. #pincushion #nomoreblood #alltappedout #canwegohomeyet

Let’s hear it for the Stomp Brigade! It’s almost time and your captain is getting revved up. We are bringin’ it for our little Reese! Check out our awesome shirts. If you don’t have one yet, we will have it ready for you Sat morning 9am at the event site. Visit our team site ifContinue reading

A crani for another day

I have fought using their terminology, but I find the more I use it here the more they listen. Found an explanation for her surgery on Web MD and I think it actually does a really good job of keeping it simple. The temporal lobe resection is the craniotomy or “crani” surgery we came inContinue reading “A crani for another day”