EEG today to see if new meds produce a different picture of her brain’s activity. She didn’t cry this time. So brave and strong. I am so proud to be her mommy. The special head wrap makes her face look so round. Her cheeks were meant to be plump. She gained half a pound thisContinue reading
Category Archives: Blog
Sweet girl getting some fullness back in those cheeks. She’s just over a year old and with her water cup as motivation, she crawled up an incline mat while we wait. She doesn’t know she is about to get another intrusion of her space — EEGs are over-stimulating in just the prep work, then thereContinue reading
Sorpresas!
Discovered today Davis has a Spanish vocabulary of 15 words! Had no idea he was retaining the words they talk about in class. Can’t tell you how elated I am.
And the BEST big brother award goes to…. Plus, he whispered a lullaby for a whole 3 minutes while doing it!
nprmusic: We’re gathering MP3s to prepare for coverage of the annual SXSW music festival. If you’re an artist playing SXSW 2013, here’s some information on how to make sure we hear one of your songs beforehand. Photo: Katie Hayes Luke for NPR Can’t wait!
More therapy fun. Today it felt good to see her happy while she was doing her thing… Not too worried about her paci, which was an improvement. And overall more responsive – and that’s with a seizure yesterday. There are these moments I realize we have come a long way but we are measuring everyContinue reading
OK With Change 