We are all smiles today. Can’t believe how much of a 180 she has done in the past 2 weeks. We celebrate every single toothy smile and giggle.
Tag Archives: Reese
Kind of a right of passage weekend here — first Reese wears two piece pajamas without feet. Seems like a small thing but apparently they don’t like making footie pjs for over 9 mo. Trust me, I looked all over and didn’t like the few I found. So she gets to let the chubs hangContinue reading
EEG today to see if new meds produce a different picture of her brain’s activity. She didn’t cry this time. So brave and strong. I am so proud to be her mommy. The special head wrap makes her face look so round. Her cheeks were meant to be plump. She gained half a pound thisContinue reading
Sweet girl getting some fullness back in those cheeks. She’s just over a year old and with her water cup as motivation, she crawled up an incline mat while we wait. She doesn’t know she is about to get another intrusion of her space — EEGs are over-stimulating in just the prep work, then thereContinue reading
And the BEST big brother award goes to…. Plus, he whispered a lullaby for a whole 3 minutes while doing it!
More therapy fun. Today it felt good to see her happy while she was doing her thing… Not too worried about her paci, which was an improvement. And overall more responsive – and that’s with a seizure yesterday. There are these moments I realize we have come a long way but we are measuring everyContinue reading
OK With Change 