cmamantov

Rough evening. Had to restrain her finally after hours of Bryan and I standing by crib holding her arms down. She finds the bandage a huge issue and won’t stop digging until she rips it off. Oh and did I mention she is snoring? Poor baby.

(Written Wed night, but fell asleep before I could finish) Don’t ask me how it’s possible. Our little warrior is blowing us away with her strength. Only 24 hrs after brain surgery and she is sitting up. I know it’s hard to believe, but we aren’t actually hoping for recovery right now. Yes, we wantContinue reading

Showing our purple pride at Cook Childrens EMU! #purpleday #epilepsywarrior #strollwithme #stomp4reese

If you’ve been to our house in the past 4 months you know she has been obsessed with this castle. Seems she is perky enough to give it a few min of playtime. #epilepsywarrior Maybe tomorrow we can play pirates since she only has the one eye right now.

Little miss Reese has definitely made an impression for #purpleday this year! So much awareness is spreading. Thank you all. @epilepsywarriors @epilepsyawareness @epilepsyfoundationtx

Never got this posted yesterday. Luckily we still have today #purpleday. Reese just had her dressings changed for the first time and they said she did surprisingly well. Better than some teenagers. To me she looks miserable. They don’t know that she isn’t a crier. They don’t realize that all of this stuff touching herContinue reading