My dad has always said you are as young as you feel. I thought it was a mantra for just himself and saying it out loud made him feel it must be true. Mom always joked she had three kids, my dad being the biggest of them all. But I have realized for my dadContinue reading “They call me Peter Pan”
Author Archives: cmamantov
We want our bubbly baby back
It’s been rough to go back to the silent, locked up baby girl after so many weeks of our bubbly girl. Today we didn’t give her the morning dose of the newer seizure med, Benzal, and while she was still groggy this morning she perked up tonight. We got two half smiles for different simpleContinue reading “We want our bubbly baby back”
Playing baseball at the park on Mother’s Day… My daddy should be proud.
The diagnosis: What’s next
Lots of info on the different potential diagnosis we are working toward. But right now she doesn’t cleanly meet the symptoms of any. So they are all theories right now, that’s all. And now what you know, is what we know. And that isn’t much. Currently treating and testing for… Auto-immune via steroids, until weContinue reading “The diagnosis: What’s next”
Patience
It’s never been easy for me, that highly coveted virtue — Patience. And it’s particularly hard these days when we feel like we have so much hinging on Reese’s prognosis. A mercurial conversation pending new test results, doctor consultations and her daily progress report. It has been flabbergastingly complex how the inter-workings of her system,Continue reading “Patience”
A Comedy of Errors: Hospital style
I can’t even recap the whole day but I can tell you about the last 3 hours with a delirious smile, because all we can do at this point is laugh. Bryan’s brother was super kind and satisfied our need to eat something healthy with a big salad and some fruit. But, we got interruptedContinue reading “A Comedy of Errors: Hospital style”
OK With Change 