Blog – Page 42 – OK With Change

Showing our purple pride at Cook Childrens EMU! #purpleday #epilepsywarrior #strollwithme #stomp4reese

If you’ve been to our house in the past 4 months you know she has been obsessed with this castle. Seems she is perky enough to give it a few min of playtime. #epilepsywarrior Maybe tomorrow we can play pirates since she only has the one eye right now.

Little miss Reese has definitely made an impression for #purpleday this year! So much awareness is spreading. Thank you all. @epilepsywarriors @epilepsyawareness @epilepsyfoundationtx

Never got this posted yesterday. Luckily we still have today #purpleday. Reese just had her dressings changed for the first time and they said she did surprisingly well. Better than some teenagers. To me she looks miserable. They don’t know that she isn’t a crier. They don’t realize that all of this stuff touching herContinue reading

It’s all done. (For now) #purpleday #epilepsyawareness

Peace at the end of a long day

We waited 7.5 hours today to find out how our baby handled brain surgery. They called to give us an update every hour or so, but that’s still an insane amount of time to wait. Good news is she is such a fighter, they say it was a “beautiful” surgery and we have survived partContinue reading “Peace at the end of a long day”