epilepsywarrior – Page 10

Never got this posted yesterday. Luckily we still have today #purpleday. Reese just had her dressings changed for the first time and they said she did surprisingly well. Better than some teenagers. To me she looks miserable. They don’t know that she isn’t a crier. They don’t realize that all of this stuff touching herContinue reading

Peace at the end of a long day

We waited 7.5 hours today to find out how our baby handled brain surgery. They called to give us an update every hour or so, but that’s still an insane amount of time to wait. Good news is she is such a fighter, they say it was a “beautiful” surgery and we have survived partContinue reading “Peace at the end of a long day”

Second night after surgery

And what a day we’ve had! This morning I got up from a pretty good night sleep to a splitting headache. To which I realized I have no room to complain compared to my daughter’s pain. Within 5 minutes of me standing up, I was watching them redress her bandages for the first time andContinue reading “Second night after surgery”

Waiting for brain surgery. Ft. Worth represented! @epilepsyfoundationtx @ftworthtexas #purpleday #bringontheGRIDS #epilepsywarrior

Look at that amazing hair, even post seizure she is beautiful. Unfortunately the time has come for us to face surgery and put all our planning into place. I will share when we know more but tonight will most likely just be waiting. Wish us luck. #ambulanceride#3 #epilepsywarrior

Living a Cliche

I could start off how I am feeling with “it was the best of times, it was the worst of times” and I would arm wrestle Dickens on who has experienced worse. But that’s not all of it. We are living more than one cliche it seems. I can’t think of any clever way ofContinue reading “Living a Cliche”