Baby steps? Maybe. But I am still celebrating. Today has been good to us. We learned Reese gained almost one and a half pounds in a week putting her on the less at risk column. And tonight we had the last dose of the terrible sticky medicine. So it’s good bye twice daily fight whereContinue reading
Tag Archives: our story
Best thing we have seen in 2 solid weeks. Wanting to eat so much she holds her own bottle is 100x better than having to fight for every ounce she swallows. Now we hope to gain the 2 pounds back that she has lost since Dec 1.
A Mother’s Fight
My arms crush you with Zeus’s strength, and yet it’s but a fleeting touch. Swirling hurricane winds would fail to rip me away. Unearthly is this force pulling me to you. Trembling lips wrap you with iron love, attempting to protect as much. No fearsome beast could stand to meet my burning eyes. How weakContinue reading “A Mother’s Fight”
Crummy week. What good is being right. Therapy.
Writing it makes it real… Don’t know whether it’s healthy therapy or teetering on depression though. R is on her fifth seizure in 54 hours. The old pattern is back. One at night, one in the morning. Give her all day to recover, seems better, and then BAM! One right before bed. And so on.Continue reading “Crummy week. What good is being right. Therapy.”
Good days, and yet…
Another great day and yet I still hold my breath. Fearful of what the dr might do if we share the good news. She is more alert and playful every day. Even clapped two blocks together, one step closer to the milestone marker for 9 months. One month behind doesn’t sound too bad. What ifContinue reading “Good days, and yet…”
Happy to report there’s a little bounce in her step again.
OK With Change 