Parent Advocacy – Page 7

Another night at the Castle

So the update that goes with these happy photos is this: we thought we might go home today because she has been doing so well we don’t even have an IV anymore. (She managed to kill or pull out all 3 in 4 days). But we will stay another night to be safe. It wasContinue reading “Another night at the Castle”

Our Warrior Gets A Medal

Showing off her medal. Big D wanted her to have it because she deserves it more than he does. #hisidea #sweetboy #epilepsywarrior #brainsurgery Had to come add to this. This boy of mine knows what melts my heart. He received this medal for reaching a reading milestone at school. (Many children got it). But heContinue reading “Our Warrior Gets A Medal”

Cake on a stick?!!! Where have you been all my life?! #TotallySpoiled #brainsurgery #BecauseSheCanHaveAnythingSheWants

And she’s up! #epilepsywarrior #brainsurgery

Even felt like eating homemade chicken rolls (with love from lousye). Thankful for #Pinterest where I discovered the recipe. It’s been our go-to food when she doesn’t feel well. Find the recipe here: http://pinterest.com/pin/277745501994211368/

She got so excited to see Ms Louyse, her nanny. She sat up, and I believe she tried to hug her. Reese even read her book, ate some homemade food and is now back to sleep. It’s such a good feeling to see her be herself. She is incredible! #epilepsywarrior #JustBrainSurgery (Source: http://instagram.com/)