I think it’s been hard for me to share this image because it makes it real and permanent. And even though we know we’ve done the right thing, there’s this feeling — call it parent peer pressure maybe? — that people won’t be able to understand how we could let them do this to herContinue reading “One Picture to Capture it All”
Category Archives: Parent Advocacy
One Picture to Capture It All
I think it’s been hard for me to share this image because it makes it real and permanent. And even though we know we’ve done the right thing, there’s this feeling — call it parent peer pressure maybe? — that people won’t be able to understand how we could let them do this to herContinue reading “One Picture to Capture It All”
Mommy rant: Hospital Livin’
My view. Let’s just say ICU rooms aren’t designed for the parents. Somewhere over there beyond the cords and electrical stalactites is my daughter. And I get it.. It’s about her not me. It’s about the nurses and doctors who need to give her what she needs. But it’s still annoying that I can’t seeContinue reading “Mommy rant: Hospital Livin’”
The unsung heroes. AKA The spoilers. These doting grandparents show so much more patience than Bryan and I. And equal parts stubbornness and love about not moving from their post, or leaving us, feeding us, you name it. We are so lucky to have them as part of the army supporting our little warrior.
It’s time!
Thank you all. Trying to fall asleep and just thought i would share we have had a wonderful family weekend and I think Davis is in a good place. As good as he can be, considering. But if you see him this week, don’t be afraid to give him a hug. 🙂 Our bags areContinue reading “It’s time!”
Our New Life: Facing the World
I feel like there’s a caption here, representing the story of her life…”time to face the world, again” or something. #epilepsywarrior
OK With Change 