Never got this posted yesterday. Luckily we still have today #purpleday. Reese just had her dressings changed for the first time and they said she did surprisingly well. Better than some teenagers. To me she looks miserable. They don’t know that she isn’t a crier. They don’t realize that all of this stuff touching herContinue reading
Tag Archives: dragonmom
Living a Cliche
I could start off how I am feeling with “it was the best of times, it was the worst of times” and I would arm wrestle Dickens on who has experienced worse. But that’s not all of it. We are living more than one cliche it seems. I can’t think of any clever way ofContinue reading “Living a Cliche”
Ready
It’s all in the lines. Skips, jumps, hills and mountains. Nothing. Everything. Waves, even and steady. Your breathing, not your brain. And my heart it falls. My lungs lose air. Frozen. Terrified. Ready. Ready??? There is no such thing. I fail you. I’m not strong enough. Crashing, reeling. My emotions, not the waves, not you.Continue reading “Ready”
A kiss to build a dream on
First, I want to make sure anyone who is following our story and/or is new to epilepsy knows something. Millions of people live with this disease. Most likely Reese isn’t the first person you’ve come across. You just didn’t know it. Thousands and thousands of people live with this disease and find ways to manageContinue reading “A kiss to build a dream on”
View from my bed. That’s right. We are home, she’s back in our room, and she is snoring. #familylove #epilepsywarrior #dragonmom
OK With Change 