No Instagram needed here. This girl is full of the energy an almost-walking baby should have. She is eating and babbling and we are loving all the added craziness that comes with a toddler. She kissed me tonight. On her own. She leaned in and intentionally smooched me. I still remember the first time DContinue reading
Tag Archives: our story
She communicates
I am 100% positive miss Reesey Piecey just signed to me she is all done with her dinner. THIS IS HUGE!
An Anniversary to Remember
I think we have kind of been glad we were able to count Doodlebug’s experience in months. We’ve read about so many stories and met other families whose unknowns lasted for years. So, we don’t revel in this anniversary like you normally would. It’s been a year today we discovered Doodlebug’s epilepsy and I willContinue reading “An Anniversary to Remember”
Test this week
It’s another test this Wednesday. We try to downplay it I think to each other and to everyone who asks. But this is a big deal the more I think about it. We are hoping to see a completely normal EEG again, but this time, we will have to stay on the steroids longer toContinue reading “Test this week”
And in more good news… Reese turned 16 months today. Weighing in at 21.5 pounds she is on the small side despite huge oreo-hiding chipmunk cheeks. She has been happy this week, note the eye contact — usual baby stuff like teething and fighting nap time. She started making sounds again Monday so we takeContinue reading
We want our bubbly baby back
It’s been rough to go back to the silent, locked up baby girl after so many weeks of our bubbly girl. Today we didn’t give her the morning dose of the newer seizure med, Benzal, and while she was still groggy this morning she perked up tonight. We got two half smiles for different simpleContinue reading “We want our bubbly baby back”
OK With Change 