ourstory – Page 2 – OK With Change

We outta he-ah!!! #epilepsywarrior #brainsurgery #nextchapter #ourstory

Something new to worry about

Our planned surgery is next Tuesday. Thought it would never get here. As I can’t say it enough, again, thank you to everyone who has helped us big and small. It’s been a wonderful month overall. We’ve been able to spend so much quality time together as a family and even when Reese has hadContinue reading “Something new to worry about”

She’s On the Move

And now for the real fun! As she gets her walking legs more and more, she has started to outsmart us and it’s such a thrill to see her figure things out. Our gates don’t hold, she is always out the door before we remember to shut it, and no cabinet is safe. We findContinue reading “She’s On the Move”

(Written Wed night, but fell asleep before I could finish) Don’t ask me how it’s possible. Our little warrior is blowing us away with her strength. Only 24 hrs after brain surgery and she is sitting up. I know it’s hard to believe, but we aren’t actually hoping for recovery right now. Yes, we wantContinue reading

Never got this posted yesterday. Luckily we still have today #purpleday. Reese just had her dressings changed for the first time and they said she did surprisingly well. Better than some teenagers. To me she looks miserable. They don’t know that she isn’t a crier. They don’t realize that all of this stuff touching herContinue reading

Second night after surgery

And what a day we’ve had! This morning I got up from a pretty good night sleep to a splitting headache. To which I realized I have no room to complain compared to my daughter’s pain. Within 5 minutes of me standing up, I was watching them redress her bandages for the first time andContinue reading “Second night after surgery”