It’s all in the lines. Skips, jumps, hills and mountains. Nothing. Everything. Waves, even and steady. Your breathing, not your brain. And my heart it falls. My lungs lose air. Frozen. Terrified. Ready. Ready??? There is no such thing. I fail you. I’m not strong enough. Crashing, reeling. My emotions, not the waves, not you.Continue reading “Ready”
Tag Archives: epilepsywarrior
First interest in books. Mama couldn’t be happier! #babybooks #epilepsywarrior #milestone
Facing fears
The real fear kicks in tomorrow. It won’t be immediate, and she could possibly be fine until our surgery date April 1, but stepping down off her steroid is the beginning of our final phase of this. At least until we start all over with new challenges after surgery. And so I think all theContinue reading “Facing fears”
She walks! 30 itty bitty steps.
Something touched me with this book and I had to have it this weekend. For Reese someday. Or maybe for me… Been thinking about Reese’s surgery a lot. How can we not? Good news (if ever there was any) we have a date! Things feel very official now. We have a surgery plan and weContinue reading
Most parents might start worrying at this point. Here, we #celebrate. #epilepsywarrior #gotamindofherown