our story – Page 4 – OK With Change

It’s time!

Thank you all. Trying to fall asleep and just thought i would share we have had a wonderful family weekend and I think Davis is in a good place. As good as he can be, considering. But if you see him this week, don’t be afraid to give him a hug. 🙂 Our bags areContinue reading “It’s time!”

Getting Spoiled

Someone is really spoiled. Since we got home from brain surgery, she’s been sleeping in our bed parts of every night for obvious reasons. Now she seems to have decided she should start out here and save us all the time of getting up. And the guilt kicks in. I’ve held her down and letContinue reading “Getting Spoiled”

Reese al Fresco

What a day! Happy Reese is such a good thing for all of us. We’ve been on cloud 9 today, soaking up all this eye contact and love from our little lady. From soccer to lunch to nap and playtime at home, she never sank into a fuss. She even humored mom and dad forContinue reading “Reese al Fresco”

Let the Healing Begin: Graphic Warning

Let the healing begin, sort of. Dissolving stitches almost gone. Staples come out Tuesday. I know it’s probably been hard to piece together where things are with us so here is the abridged version. First surgery was for the EEG implant and we got the data we needed. Second and third surgeries were emergencies toContinue reading “Let the Healing Begin: Graphic Warning”

My Unhealthy Photo Obsession, My Messy Beautiful

I confess snapping photos has become an unhealthy obsession. Yes, I’m the typical mom who loves to share photos of her kids, but there’s a catch. My messy, beautiful life has me seeing every moment as a memory I don’t want to miss recording. For the past year, I’ve worried every smile, every silly thing, every stepContinue reading “My Unhealthy Photo Obsession, My Messy Beautiful”

Holding on

There is no amount of space big enough to hold our fears right now. They just took Reese back for emergency surgery to remove the blood pooling outside her brain again. They feel she may have a bigger issue that needs to be looked at so tomorrow’s epilepsy surgery is postponed. This is not aContinue reading “Holding on”