Parent Advocacy – Page 10

Let’s hear it for the Stomp Brigade! It’s almost time and your captain is getting revved up. We are bringin’ it for our little Reese! Check out our awesome shirts. If you don’t have one yet, we will have it ready for you Sat morning 9am at the event site. Visit our team site ifContinue reading

A crani for another day

I have fought using their terminology, but I find the more I use it here the more they listen. Found an explanation for her surgery on Web MD and I think it actually does a really good job of keeping it simple. The temporal lobe resection is the craniotomy or “crani” surgery we came inContinue reading “A crani for another day”

Holding on

There is no amount of space big enough to hold our fears right now. They just took Reese back for emergency surgery to remove the blood pooling outside her brain again. They feel she may have a bigger issue that needs to be looked at so tomorrow’s epilepsy surgery is postponed. This is not aContinue reading “Holding on”

We are so loved. Thank you everyone who showed their support and wore purple this week! What a showing we had! And I know there were more we just didn’t snag them. 🙂 This was such an uplifting realization for us this week, to see Reese is loved far and wide. Literally in multiple states,Continue reading

(Written Wed night, but fell asleep before I could finish) Don’t ask me how it’s possible. Our little warrior is blowing us away with her strength. Only 24 hrs after brain surgery and she is sitting up. I know it’s hard to believe, but we aren’t actually hoping for recovery right now. Yes, we wantContinue reading

Never got this posted yesterday. Luckily we still have today #purpleday. Reese just had her dressings changed for the first time and they said she did surprisingly well. Better than some teenagers. To me she looks miserable. They don’t know that she isn’t a crier. They don’t realize that all of this stuff touching herContinue reading